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BI has hosted one of the rare Facebook Live events in pharma, from the Systemic Sclerosis World Congress in Bordeaux, France. The company has also released an unbranded website "More Than Scleroderma: The Inside Story,". Talking about the Facebook Live event:

That engagement “confirmed the importance of continuing to use Facebook Live to connect with this community, along with others. Social media is intended to be shared–so, especially in instances like this where we are trying to raise disease awareness, this is an extremely important tool to utilize,” [Al Masucci, VP of Boehringer’s Idiopathic Pulmonary Fibrosis (IPF) business unit] said, adding that “We use Facebook Live to break down barriers.”

Masucci said the event resulted in “overwhelming engagement” … but for a rare disease that may not be huge numbers. Still, opportunities like this for patients to interact in real time are valuable and other rare disease marketers could leverage the same technologies to good effect.


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