A major theme at Health Datapalooza was the blocking of data that patients consider their own property. And patients are ready to take on the challenge of handling their own data:
In general, when it comes to data acceptance “patients are ahead of the game,” said Tim Kelsey, national director for patients and information for the U.K.’s National Health Service. Patients are by and large ready, particularly once they have a medical condition, to share their data and work with other patients with similar conditions, he added.
In the US data blockages are rampant, with per transfer costs being held up as examples of exorbitant pricing by providers who are mistrusted about their willingness to share data from their systems:
[National Coordinator for Health IT Karen] DeSalvo said one major push by the government will be to make sure HIPAA is not used as “an excuse or a misunderstanding as to why consumers cannot have access to their health information.”
Other stories from the Fierce network:
- High-profile Huntington’s disease film scores on social media, but where was pharma?
- Facebook lets brands wonder if GIFs will come to pages
- Report: 35% of businesses cite data loss from improper use of file-sharing services
- ASCO must-reads: Pfizer’s Ibrance; BMS, Novartis melanoma meds; J&J’s Imbruvica and more
Source: Fierce Health IT